A parent carer is someone over 18 who provides care to a disabled child for whom they have parental responsibility. A non-parent carer of a disabled child is someone over 18 who provides care to a disabled child for whom they do not have parental responsibility (such as a grandparent).

Carers Trust, 2019

In the UK today there are approximately 6.5 million carers and 8% of this figure are parent carers, equating to approximately 520,000 adults that are caring for a disabled child (Carers UK, 2019)

Contact details of National and Local Support Services which may be able to offer information, support and advice to Parent Carers in Northamptonshire

Northamptonshire Carers

Northamptonshire Carers aim to offer a comprehensive support service to Carers within our contracted geographical areas and in collaboration or close partnership with organisations that complement the service we deliver.  


Wellbeing Workshops for Parent Carers

A series of five sessions that aim to build on each person’s strengths, improve emotional and mental wellbeing and increase effectiveness in advocating for our children, families and ourselves.

For more information please email: [email protected]

or Northamptonshire Carers Support Line Tel:  01933 677907

General Information

Contact A Family

Our East Midlands team offers:

  • help for families to find out what's available locally
  • details of local parent support groups
  • guidance for support groups and forums to help them to reach and involve parents
  • training for children's centres to help them reach and involve families with disabled children
  • resources for professionals to help them point families to the right local services.

National Helpline: 0808 808 3555 from 9.30am-5.00pm, Monday-Friday.


Family Lives

Offers a confidential and free* helpline service for families in England and Wales (previously known as Parentline). The service offers emotional support, information, advice and guidance on any aspect of parenting and family life.

Helpline – 0808 800 2222 (9am – 9pm, Monday to Friday and 10am – 3pm Saturday and Sunday).

The Local Offer

The Local Offer provides information on services and support available to services for children and young people in Northamptonshire (aged 0-25) with special educational needs and disabilities.  The Local Offer also provides details of Support Groups that are available in Northamptonshire for Parent Carers.


Campaigning for equality and providing information, advice and support for people with disabilities. Scope's helpline provides free, independent and impartial advice and support on issues that matter to disabled people and their families.

Helpline: 0808 8003333 or by email to [email protected].

SCOPE have a Navigate service for parent carers.  Navigate is a 6-week programme that puts you in touch with a personal adviser, who will help you to talk about your feelings and concerns. The following eligibility criteria apply for this service:-

  • lives in England or Wales
  • has parental responsibility for a child under 18
  • this child is on a pathway to diagnosis or has received one in the last year

You can apply online at Scope Website or get a referral from the helpline.


En-Fold is post-diagnostic support service for families affected by autism spectrum disorder (ASD). This newly-formed charitable incorporated organisation (CIO) provides early intervention support following a diagnosis. They aim to reduce isolation and ensure families access the right support for their child.

Mobile number: 07845 905766

Email address: [email protected]


Offers a free, friendly, independent and confidential telephone helpline for parents and others looking for information and advice on Special Educational Needs and Disability (SEND).

The charity concentrates on helping people to find their way through the legal and procedural maze which is so daunting to so many who try to obtain satisfactory provision for a child’s special needs.

National Helpline - 0300 302 3731or 0208 538 3731

Further details on their Website 

SNIX (Special Needs Index)

Quarterly newsletter providing information of support groups, activities (both term time and school holidays) and useful telephone numbers of services relevant to SEND in Northamptonshire.  Carers can access the newsletter by completing a registration form on NCC website.


Support related to Education

Council for Disabled Children

Information and Resources

Online library of resources that you can access to find out more about disability policy and practice which includes a selection of materials specifically written with parents in mind. You may find the following resources a good starting point:

  • Parent carer guide to the Code of Practice
  • Disabled Children: A Legal Handbook
  • Directory of national helplines and support services for parents
  • Expert Parent Programme
  • A family guide to the SEN system
  • My Rights, Your Responsibility leaflets
  • Requirements to provide Health Advice within six weeks

 Council for Disabled Children Website


Northamptonshire’s Information, Advice and Support Service is a statutory service which is run at ‘arm’s length’ from the Local Authority and provides free, confidential, impartial advice, guidance and support to parents of children with special educational needs and children and young people with SEND.

Contact Number: 01604 364772


IPSEA – (Independent Parental Special Education Advice)

IPSEA offers free and independent legally based information, advice and support to help get the right education for children and young people with all kinds of special educational needs and disabilities (SEND).

Our telephone Advice Line provides legally based information and next step advice on any educational issue that is the result of a child’s special educational needs or disability. To book an appointment with an IPSEA advisor please use the online booking form on IPSEA’s website.

IPSEA’s website also has a wealth of legal advice and resources where you may also find the information you require.

National Autistic Society

To receive an information pack call 0808 800 4104 and select from an adult or child information pack to leave a voicemail to request an information pack.

- For an adult information pack, please press Option 1 followed by Option 1.

- For a child information pack, please press Option 1 followed by Option 2.

Education Advice Lines can help when you want general information about your child’s educational rights and entitlements or advice on specific topics such as getting extra help in school, assessments, education plans, reviews or school transport.

NAS Tribunal Support Lines can help you consider your options if you have a right of appeal against a decision about your child’s educational needs.

Leave a message on the 24-hour answering service and you will receive a call back – 0808 800 4102 (free from landlines and most mobiles) and press:

England – Option 1 for our Education Advice Line and option 2 for our Tribunal Support Line.

The Website can be found here  

Broadly related to health.


Child and Adolescent Mental Health Services. Information about services on Northamptonshire Healthcare NHS Trust website.

Service Six

Mental Health Support Services for Children, Young People, Adults and Communities

Contact No: 01933 277520 or 01933 273746

Or Website

The Lowdown

Voluntary Mental Health organisation, providing free and confidential counselling, emotional wellbeing, sexual health and LGBTQ support services for 11-25 year olds.

Contact No: Helpline – 01604 622223 or Office – 01604 634385.

Or Website  

Benefits and Charitable Grants

*Please note there are many other charitable grans that may be available for parent carers and their families and information regarding these can be found online 

Family Fund Holidays, White Goods, Laptops etc. Parents can self-refer online  or by calling 01904 550055.
Independence at Home Grants for small items e.g. buggies

Referrals from professionals only online or 

Tel: 020 8427 7929 

HCAG Charity Large items e.g. wheelchair, beds etc.

Referrals from professionals only.

Tel: 0147 2813000.

BBC Children in Need   

Emergency Essentials Programme
White goods and essential items.

Available for families on certain benefits.

Tel: 01904 550011/571059 or apply via website

Leicester Charity Link

Wide range of grants available e.g.

flooring, carpets, white goods etc.

Means tested charity (families on low incomes).

Tel: 0116 222 2200 or email 

Newlife Equipment for severely disabled children.

Not means-tested.

Tel: 0800 902 0095 or email
Disability Grants Various grants.

Online via Website

Download a PDF version of this leaflet

A reminder is given that Parent Carers are welcome to attend most of the groups and activities that we organise, however, any specific groups for Parent Carers will be listed along side other groups and activities such as Support Groups, Informal Drop Ins, Wellbeing Workshops on our Group Support Page