Introduction

We, Northamptonshire Carers, are both the ‘controllers’ and ‘processors’ of the information which we collect about you (‘personal data’). Being controllers of your personal data, we are responsible for how your data is processed. The word ‘process’ covers most things that can be done with personal data, including collection, storage, use and destruction of that data.

This notice explains why and how we process your data, and explains the rights you have around your data, including the right to access it, and to object to the way it is processed. Please see the section on ‘Your rights as a data subject’ for more information.

We are a registered charity and our contact details are:

Address:      The Anne Goodman Centre for Carers, 123 Midland Road, Wellingborough, Northamptonshire, NN8 1LU
Email: [email protected]
Telephone number: 01933 677907

 

Our Data Protection Officer (DPO) is Louise Peerless Operations Manager, who you can contact with the details above if you have any queries about this notice or anything related to data protection.

 

Personal data

‘Personal data’ is any information that relates to a living, identifiable person. This data can include your name, contact details, and other information we gather as part of our relationship with you.

It can also include ‘special categories’ of data, which is information about a person’s race or ethnic origin, religious beliefs, physical or mental health or sexual orientation. The collection and use of these types of data is subject to strict controls.

We are committed to protecting your personal data, whether it is ‘special categories’ or not, and we only process data if we need to for a specific purpose, as explained below.

We collect your personal data mostly through our contact with you, and the data is usually provided by you, but in some instances we may receive data about you from other people/organisations. We will explain when this might happen in this Notice.

 

Your data and how and why we process it

In general terms, we process your data in order to manage our relationship with you. The table below lists more specific purposes for processing your data, and the legal basis for each type of processing.

Data processing Legal basis for processing

Recording of personal details of Carers, clients and the people they care for. This includes special categories of data, which identifies a person’s race or ethnic origin, religious beliefs, physical or mental health or sexual orientation. As well as personal details, we keep accurate case notes and record attendances at our activities.

This is under contract with you and allows us to support those registering their details with us (processing is necessary for the performance of a contract to which the data subject is party or in order to take steps at the request of the data subject prior to entering into a contract).

Northamptonshire Carers are contracted to complete Carers Assessments and Support Plans on behalf of North Northamptonshire Council, West Northamptonshire Council and Northamptonshire Childrens Trust. This involves recording identifiable information for carers and cared for people as well as a description of the caring role and it’s impact

The UK GDPR Article 6 lawful basis for the data processing is:

  • necessary for compliance with a legal obligation to which the controller is subject; and
  • necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller.

Keeping you up to date with our services, updates that may be useful for Carers & their families and our fundraising activities (you are under no obligation to donate – please see our Fundraising Promise for more information). This is in the form of an emailed monthly Newsletter.

With consent. We ask whether you consent to be sent such information and will only do so if you opt in to receive this.

Recording of personal details of those receiving regulated care. This includes special categories of data under GDPR Article 9(2)(h), which identifies a person’s medical diagnosis, the provision of health or social care or treatment or the management of health or social care systems; race or ethnic origin, religious beliefs; physical or mental health; or sexual orientation. As well as personal details, we keep accurate case notes and care plans in line with Carer Quality Commission (CQC) guidelines.

With consent and in line with GDPR Article 6(1)(e) – the performance of a task carried out in the public interest

Recording of personal details of those receiving regulated care. This includes special categories of data under GDPR Article 9(2)(h), which identifies a person’s medical diagnosis, the provision of health or social care or treatment or the management of health or social care systems; race or ethnic origin, religious beliefs; physical or mental health; or sexual orientation. As well as personal details, we keep accurate case notes and care plans in line with Carer Quality Commission (CQC) guidelines.

With consent and in line with GDPR Article 6(1)(e) – the performance of a task carried out in the public interest

If you apply for a paid or volunteer vacancy, your application details including contact details, application form and CV will be stored on our systems and that of our Applicant Tracking system (Hireful). If successful, your details will be transferred to our volunteering and HR systems (Charitylog and Breathe). If unsuccessful, you will be asked if we can retain your records longer however if you do not consent, they will automatically be deleted after six months.

With consent. If you become a volunteer or paid member of staff then records are held in line with our duties as an employer and voluntary sector organisation and will be explained to you upon joining us.

 

At times, we may further process data which we have already collected. We will only do this if the new purpose for processing it further is compatible with the original purpose that the data was collected for. We will tell you about any further processing before carrying it out.

 

Personal data received from third parties

This is a list of your personal data that we may receive from other people or organisations.

Data Source

The majority of the information we hold will have come from you however we do also receive data from 3rd parties making referrals to us. Incoming referrals will likely include contact details (name, phone numbers, address etc) along with a summary of the situation including medical conditions and personal circumstances.

Incoming referrals may be sent to us via a professional such as your GP surgery, Care Manager or Social Worker. We ask that professionals gain your consent before accepting a referral

 

Who we share your data with

For some processing purposes we share your data with third parties. This is a list of the information we may share with external recipients, and for what purpose:

Recipients of your data Purpose for sharing
Northamptonshire Carers are contracted to complete Carers Assessments on behalf of North Northamptonshire Council, West Northamptonshire Council and Northamptonshire Childrens Trust. Carers Assessments and Support Plans are shared securely between us in order to deliver this statutory service.

The UK GDPR Article 6 lawful basis for the data processing is:

  • necessary for compliance with a legal obligation to which the controller is subject; and
  • necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller.

Details of carers accessing services including carers assessments personal details about the people carers care for are shared with North Northamptonshire Council, West Northamptonshire Council and Northamptonshire Childrens Trust according to responsibilities in delivering statutory carers assessments under contract from local authorities. The following information is shared:

  • NHS number
  • Full name
  • GP surgery
  • Gender
  • Ethnicity
  • Date of birth
  • Date of death (if applicable)
  • Primary disability
  • Postcode
  • Accommodation status
  • Employment status
  • Whether person is a carer or has a carer
  • Date, description and outcome of service request, carers assessment, service delivered and/or review
  • Hours caring per week
  • Number of people cared for
The Data Provision Notice (DPN) of 8th February 2023 regarding Client Level Data  notifies local authorities that information is required by NHS Digital under section 259(1)(a) of the 2012 Act to comply with the Collection of Client-Level Adult Social Care Data (No. 2) Direction. In line with section 259(5) of the 2012 Act local authorities must comply with the requirement and provide information to NHS Digital in the form, manner and period specified in the DPN. The National Data Opt-Out will not apply to the submission of data to NHS Digital for this collection as the DPN is a legal requirement with which the participating organisations must comply.

We also have contractual obligations to report to funders (i.e.  NHS, charitable grants, National Lottery) about our activities.  

Unless there is a legal reason to do so (see references to Carers Assessments) or separate consent is given, only non-identifiable data is shared with funders and allows us to report on the outcomes of our funding as per our contracts with funders.

Although rare we occasionally have cause to report a risk to yourself or others to the Local Authority

Where we have cause to do so, we are duty-bound to follow safeguarding policies (processing is necessary in order to protect the vital interests of the data subject or of another natural person), these include:

  • Local Safeguarding Adults policy & procedures.
  • Working Together to Safeguard Children 2018 Guidance.
  • Diseases and Dangerous Occurrences Regulations 1995 (RIDDOR) to ensure that incidents are recorded in line with the Reporting of incidents and Injuries.

As part of our role of providing support, we may refer to 3rd parties who may be able to provide support on a particular issue. For example referring to a specialist agency for benefits advice or to another charity who work in particular field.

Unless there is a legal basis not to (see safeguarding and Carers Assessments clauses above) we only refer to 3rd party organisations with consent.

Although not routinely collected, should you provide us with your bank details to process a payment (such as to process a charitable grant or Local Authority Carer Support Payment), these will be shared with or payroll provider (currently Dove Naish)

Bank details are only recorded as needed and with your consent in order to pay you as agreed.

Specifically in relation to the delivery of regulated care we need to share personal information. We will share this information with other professionals and those with appropriate exceptions included in the delivery of your care such as your GP, Nurse, local authority, NHS and other care providers. The Care Quality Commission (CQC) have the power, by law, to ask for information and see files we hold on the cared for person at our offices and we are obliged to comply with them to do this.

To safely deliver regulated care services in line with CQC requirements. To improve the service we provide and the care we deliver. The CQC check our quality of services and may contact you to request feedback on the services we provide.

 

How we store your data

Your personal data is held in both hard copy and electronic formats.

Electronic data, including emails, is stored on our servers, which are located off-site in the UK and our CharityLog database whose servers are located in the UK.

 

How long we keep your data

Information about how long we process your data for can be found in our Data Protection & Information Sharing Policy

Some retention periods are based on legal requirements or in the case of regulated care provision, the Care Quality Commission; while others take into account practical needs to keep the data.

Once the applicable retention period expires, unless we are legally required to keep the data longer, or there are important and justifiable reasons why we should keep it, we will securely delete the data.

 

Your rights as a data subject

As a data subject, you have the following rights in relation to your personal data processed by us:

  • To be informed about how your data is handled;
  • To gain access to your personal data;
  • To have errors or inaccuracies in your data changed;
  • To have your personal data erased, in limited circumstances;
  • To object to the processing of your personal data for marketing purposes or when the processing is based on the public interest or other legitimate interests;
  • To restrict the processing of your personal data, in limited circumstances;
  • To obtain a copy of your data in a commonly used electronic form, in limited circumstances;
  • Rights around how you are affected by any profiling or automated decisions.

 

Parental Consent

In cases where details of children under 18 are stored (i.e. Young Carers), we require the consent of a parent or guardian.

  

Withdrawing consent  

If we are relying on your consent to process your data, you may withdraw your consent at any time.

Data Protection Impact Assessments

Our Data Protection Impact Assessments (DPIAs) can be accessed by clicking on the relevant topic below.

Database Processes
IT Systems
Online Data Collection forms
Regulated Care
Website
Hospital Services
Personnel & Recruitment
Group Consultations

Our Policies

Our policies can be downloaded here:

Complaints to the Information Commissioner

You have a right to complain to the Information Commissioner's Office (ICO) about the way in which we process your personal data. You can make a complaint on the ICO’s website https://ico.org.uk   

 

Exercising your rights, queries and complaints  

For more information on your rights, if you wish to exercise any right or for any queries you may have or if you wish to make a complaint, please contact our Data Protection Officer and Information Governance Lead, Louise Peerless who can be contacted at: Northamptonshire Carers, The Anne Goodman Centre for Carers, 123 Midland Road, Wellingborough, Northamptonshire, NN8 1LU; [email protected]; 01933 677907

A PDF version can be found here.