Being Heard: a self-advocacy guide for carers - Carers UK

Caring can be rewarding but also very isolating. You may not know what help to ask for, how to ask, or indeed who to ask.

Being Heard: a self-advocacy guide for carers can help you get your voice heard when you care for someone. Self-advocacy is about being able to have your own needs listened to, as well as speaking up for the person you care for.

The guide stems from work carried out by Carers Scotland and the Scottish Government since 2011, and each guide reflects the situation for carers in each UK nation.

The guides are packed with new information on carers’ rights, speaking up and looking after your wellbeing.

Get The Guide - English

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In addition to contacting you with administration information, such as when setting up a gift or volunteering, we'd love to keep you posted with our news, activities and how you can help in other ways. We'll never sell or swap your details with anybody else.

The only exception is when we complete a carers assessment which is a statutory duty that we perform on behalf of Northamptonshire County Council and we are legally duty-bound to share Carers Assessments with the, This is done securely. For more information see our privacy policy.

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We will always store your personal details securely. We’ll use them to provide the service that you have requested, and communicate with you in the way(s) that you have agreed to. Your data may also be used for analysis purposes, to help us provide the best service possible. For full details see our Privacy Policy or contact our Information Governance Lead on 01933 677837

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Protecting Your Personal Data Is Important To Us

Northamptonshire Carers is registered with the Information Commissioner’s Office and acts in accordance with the General Data Protection Regulations (2018). Under this legislation your personal information will be treated as confidential, kept safe and secure, used fairly and lawfully and not kept for longer than is necessary.

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1. Northamptonshire Carers is a registered charity (No. 1061417).
2. Data is held in line with the General Data Protection Regulations (GDPR) 2018
3. By donating you are agreeing for payment details (bank details or debit/credit card details) being entered onto Northamptonshire Carers’s website and our partners Go Cardless & Stripe
4. Once entered, bank details are no longer accessible by Northamptonshire Carers.
5. Donations will be used by details will be processed securely through our website and our partners Go Cardless & Stripe for charitable purposes as per our ‘Fundraising Promise’
6. Northamptonshire Carers also hold the name and addresses of Friends of Northamptonshire Carers along with email addresses (optional). This is so we can process payment.
7. We will always store your personal details securely. We’ll use them to provide the service that you have requested, and communicate with you in the way(s) that you have agreed to. Your data may also be used for analysis purposes, to help us provide the best service possible. For full details see our Privacy Policy (available at https://www.northamptonshire-carers.org/privacy-policy – hard copy available upon request) or contact our Information Governance Lead on 01933 677837
8. Friends of Northamptonshire Carers membership automatically renews at your current rate/frequency if paid via direct debit and you are free to cancel at any time without penalty. Should you pay a one-off annual amount, we will send you a reminder to renew towards the end of you annual membership.

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1. By registering my details with Northamptonshire Carers, a confidential computer record will be created. This will be kept securely as per the General Data Protection Regulations (GDPR, 2018).
2. If I have provided any information about someone else (i.e. the person(s) I care for), I will ensure that they are advised about this.
3. I understand that Northamptonshire Carers complete Carers Assessments on behalf of Northamptonshire County Council so Carers Assessments and Support Plans are shared securely between these organisations in order to deliver this statutory service.
4. My information will only be shared with other parties with my consent. For example if I agree to be referred to other organisations to provide support.
5. An exception to this would be if Northamptonshire Carers need to report a risk to myself or others whereby Northamptonshire Carers are duty-bound to follow safeguarding policies.
6. If I have completed a Carers Assessment I agree that the information I have provided is accurate to the best of my knowledge.
7. Copies of any Carers Assessment or Support Plan will be sent to me. I understand that I can also access a copy of my records held by Northamptonshire Carers. To request this or to discuss confidentiality further, I can contact Northamptonshire Carers' Data Protection Officer. Further information can be found on our website: https://www.northamptonshire-carers.org/privacy-policy (hard copy available upon request)

Please contact us if you need any of these explaining or you need further information.
Northamptonshire Carers
123 Midland Road
Wellingborough
NN8 1LU
01933 677837
[email protected]

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